Websites of use to newer people Options
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  More options Jan 21, 3:25 pm

Newsgroups: alt.support.epilepsy
From: "G." <>
Date: Wed, 21 Jan 2009 11:25:08 -0800 (PST)

Subject: Websites of use to newer people

Below is a 'Paste' of older message I posted about last November?

There may have been other posts on the same thread (if you have
access
to history with similar Subject line to above).

So far as I know these sites are still in use and updated by their
various providers.
   If you or someone else knows of others that might be of use to
people who read here (formerly people were posting from 8-10
timezones),  you can add them below on this thread, and people who
read here only once or twice a week can benefit from them.   G./

(Note-- I didn't go back and Re-click any of the sites to make sure
they're all still active. Some sites could expire after some time if
the Authors stopped keeping them up-to-date.  )

Below is part of an older post I put together of various websites we
had appear here over last ~5 years. Then some others added their
favorite sites to the threads so I picked those up and added them to
give the total of 7, below.
***************
Sites 1 - 7 of 7
1 From: G.
This is the Website post I said I'd post again. The First Aid Site
that
lists what each seizure type looks like is below. Inside that
link is another one for First Aid in Water (swimming).
If the page has a coloured background, there is a button
that says "Printable Version" and if you Click on that, it takes off
colours so you can print it on White Paper to keep. G./

A new site (to me) someone suggested is at http://www.epilepsy.com .

The main Idaho Epilepsy News site is at http://www.epilepsyidaho.org
.
(Julie Walton posts here regularly and maintains the Idaho Website
for
people there and us too. )

Within that are links that also go through an Education area called
Learn about Epilepsy -- at http://www.epilepsyidaho.org/learn.htm   .

Often some *symptoms people **exhibit give clues to *type of seizures
they're having and best described on a First Aid for Seizures Chart.

These are my favorites -- also from Epilepsy Idaho. One is
http://www.epilepsyidaho.org/seizure2.htm   and that links to
http://www.epilepsyidaho.org/seizure.htm  . One of those is easier to
print, although both display well for information or reference.
/////////
Howdy Dave has a site he put together ~10? years ago and he regularly
updates. He was also one of the oldest :-< members of this group and
someone told me he was one of the Founders too. His site is at
http://www.howdydave.com .
//////////
The main U.S. Ep. Foundation website is at http://efa.org . THIS SITE
Has a Medication Glossary, although I found my own pharmacist a
useful
source of information if I had Side Effects or Questions about a
particular prescribed pill.

2 From: howdydave
Date: Tues, Jan 31 2006 8:52 pm
Email: "howdydave" <>
Groups: alt.support.epilepsy

Howdy!
Another good site is the BrainTalk Forums.

Brain Talk has forums related to just about every neurological
disease
and disorder under the sun.

The Epilepsy forum is:
http://brain.hastypastry.net/forums/forumdisplay.php?f=133

At the present time they are having server problems so the response
is
VERY slow... but There's a LOT of good information there.
****** G. ON A LATER POST the Website of above one that Howdy Dave
posted had **Changed to this one.  (I left them both in case this
second doesn't link to the site he mentioned.)  The LATER Post listed
this -->
http://brain.hastypastry.net/forums/forumdisplay.php?=144  /

3 From: guitarmom
Date: Wed, Feb 1 2006 8:00 am
Email: "guitarmom" <>
Groups: alt.support.epilepsy

Great sites!  I find so much information on
Emedicine to help understand seizures as well as the syndromes, EEG,
and variants. it is based on articles that neurologists have written
and peers have edited and reviewed. There is a place for definitions
as well -->

http://www.emedicine.com/neuro/topic415.htm
  You can do a search there for all things epilepsy or neurology as
well.

http://www.neuropat.dote.hu/epilepsy.htm   Internet handbook for
neurology has a great number of quality sites as well. this is
compiled
by a neuro in Hungary.
Ginny

4 From: howdydave
Date: Wed, Feb 1 2006 11:41 pm
Email: "howdydave" <>
Groups: alt.support.epilepsy

Let's not forget:
Strathearn Neurological Access Point
aka: SNAP
http://www.sol.co.uk/k/keir/snap1.htm

Set up by Dave Ferguson (the REAL founder of this group) in Scotland.

5 From: Rocking4Epilepsy
Date: Wed, Feb 8 2006 12:01 pm
Email: "Rocking4Epilepsy" <>
Groups: alt.support.epilepsy

You also may find all your first aid and safety precautions on our
site
below
http://dannyjr.proboards44.com/index.cgi

6 From: polaris
Date: Thurs, Feb 2 2006 2:54 pm
Email: polaris <>
Groups: alt.support.epilepsy

BrainTalk looks very good. (listed above at #2 )
Thanks for the suggestion.

7 From: guitarmom
Date: Thurs, Feb 9 2006 8:37 am
Email: "guitarmom" <>
Groups: alt.support.epilepsy

Another great site that I have found is
http://www.epilepsy.ca/eng/mainSet.html

if you go to the opening page where it has English or French it does
have a flickering candle. This page does not have it.
There is a great deal of information here, well done and easy to
maneuver.

I've never actually heard of a Deja Vu type aura, or a Jamais Vu
aura because It wasn't necessary for me to know I suppose, but as you
were saying that your seizures began on the right side of your temporal
lobe, I suppose you used to get the sour or lemony aroma just before
they happened... I perhaps just wake up somewhere on the floor, all wet,
with the entire place torn apart , and hope you found somewhere
to sit down or get out of the way of any danger before your seizures
actually occurred!  

All the best