On Oct 29, 10:17 pm, google <goo
...@twoconnect.com> wrote:
> hi all, my son had a grand mal seizure at 4. He was not sick and did
> not have a fever. he just woke up one morning and had a grand mal
> seizure. He's never had another one. He is now 9 years old and weighs
> 65 pounds. He's on trileptal twice daily, 150 mg morning and another
> in the evening. anyway, we do EEG's 1x a year. they always come out w
> spikes. so i went to the neuro today and he said we had 3 choices 1)
> stop giving him Trileptal and hope that he doesn't have another
> seizure since he only had 1 and has not had a recurrence in 5 years 2)
> keep doing the same thing since he has not had another recurrence
> which is 150mg Trileptal in the morning and another in the evening or
> 3) increase his dosage to 300mg in the morning and 300mg in the
> evening which is the dosage he is supposed to be taking. he said
> either decision would be fine since he has not had a recurrence in 5
> years. it's a tough call bc his EEG still shows spikes. it's a risk
> to take him off the meds bc he may have a recurrence but we'll never
> know if we don't try. from my side, i don't want another seizure, but
> i also don't like him on meds. he's been on the them 5 years and he's
> never had another seizure. it's a difficult decision for me. just
> wanted to get your advice. thanks!
This group hasn't been very active for more than 6 months. There used
to also be a uk group -- poss uk.sci.epilepsy? (a guess), that was
also not as active.
I haven't used Trileptal, nor have Medical training, but if he's
still showing spikes on EEG wouldn't the Dr. recommend staying at dose
he's at? (assumes he's not having szrs. *now while at the doses you
listed?)
I don't know what value would be of Upping the dose, if he's
'just' showing spikes but hasn't had symptoms? or seizures since
you've had him at that level? Some of the medications if the dose is
too high for age/ metabolism rate, *that can cause side effects that
may not be desirable either (lethargy, mood effects, etc.) .
In any event (until someone shows up with *experience with that
pill they can share), any reductions etc. should be done with the
Doctor's help, as prompt or unsupervised stopping of some of these can
cause side effects themselves that we don't want either....
Not a lot of help, sorry about that, but just some thoughts I had
when I saw your posts. G./
(Also this is an international group, so if some of the regulars
from about 12 timezones don't read the group every day, you could
check here in case some of them are still around and have more useful
comments. )
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