hi all, my son had a grand mal seizure at 4. He's never had another one. He is now 9 years old and weighs 65 pounds. He's on trileptal twice daily, 150 mg morning and another in the evening. anyway, we do EEG's 1x a year. they always come out w spikes. so i went to the neuro today and he said we had 3 choices 1) stop giving him Trileptal and hope that he doesn't have another seizure since he only had 1 and has not had a recurrence in 5 years 2) keep doing the same thing since he has not had another recurrence which is 150mg Trileptal in the morning and another in the evening or 3) increase his dosage to 300mg in the morning and 300mg in the evening which is the dosage he is supposed to be taking. he said either decision would be fine since he has not had a recurrence in 5 years. it's a tough call bc his EEG still shows spikes. it's a risk to take him off the meds bc he may have a recurrence but we'll never know if we don't try. from my side, i don't want another seizure, but i also don't like him on meds. he's been on the them 5 years and he's never had another seizure. it's a difficult decision for me. just wanted to get your advice. thanks!
> twice daily, 150 mg morning and another in the evening. anyway, we do > EEG's 1x a year. they always come out w spikes. so i went to the > neuro today and he said we had 3 choices 1) stop giving him Trileptal > and ***hope that he doesn't have another seizure since he only had 1 and > has not had a recurrence in 5 years 2) keep doing the same thing since > he has not had another recurrence which is 150mg Trileptal in the > morning and another in the evening or 3) increase his dosage to 300mg > in the morning and 300mg in the evening which is the dosage he is > supposed to be taking. he said either decision would be fine since he > has not had a recurrence in 5 years. it's a tough call bc his EEG > still shows spikes. it's a risk to take him off the meds bc he may > have a recurrence but we'll never know if we don't try. from my side, > i don't want another seizure, but i also don't like him on meds. he's > been on the them 5 years and he's never had another seizure. it's a > difficult decision for me. just wanted to get your advice. thanks!
A little late possibly, but most of the 'olde' readers who used to be here don't appear to be reading the group any longer, or as frequently. I don't know why the Dr. would want to *increase a dose when he's *controlled now with what he's taking? He's still showing spikes, so I'd assume there is still activity? (*I'm not a Doctor, just someone who used different pills.) Under Option 1 at top, did they consider *reducing the pills slowly, with view to stopping them (as you wanted?) but while watching that there aren't new seizures.
Did that Doctor, or whoever first prescribed the pills, say why they'd start him on a prescription after *only the one seizure and at Age 4 ? I had thought (again non-medical thought), that many of the Anti Seizure pills were difficult to configure and monitor for Children vs. Adults who are more stable Metabolism and Body weights, but that's just from what I had read *here more than 5 years ago. G./
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